Donate Organ Save Life

Chief Guest: Prof P K Dash- (Ex DMET, Odisha)
Guest of Honor: Mr. Binod Dash (Secretary, OPECA)
Chef Speaker: Mr. Kuna Tripathy (Social activist, Journalist, News Fuse fame)
Special Guest:

  • Dr. Binod Kumar Mishra, Director Family Welfare, Go O
  • Dr. Indramani Jena (Secretary, Odisha Private Hospital and Nursing homes Association)
  • 11.00-11.12: Welcome Address and Introduction of guest, Mr. Ravi Pratap (ILPF Member)
  • 11.12-11.25: Concept of ILPF- Dr. Ashok Choudhury, Hepatologist,
  • The focus of ILPF (7min talk+3 min questions)
  • 11.25-11.35: Liver disease Burden and the policies in India-time to act!!!
  • Dr. SP Singh, Prof and Head, Dept. of Gastroenterology SCB Medical College, Cuttack
  • 11.35-11.45: Hepatitis B – innocent newborn and the ignorant mother; where are we?
  • Dr. Pruthviraj Sethi, Asst. Prof. Obstetrics and Gynaecology, AIIMS, Bhubaneswar.
  • 11.45-11.55: Obesity, life style, Nutrition and Liver disease- a time bomb by 2025:
  • Dr. Sunita Sahoo, Head of Clinical Nutrition: Apollo Hospital, Bhubaneswar.
  • 11.55-12.05: Alcohol use and abuse- that kills youth and ruins the happy family
  • Dr. Suvendu Mishra, Asso Prof Psychiatry, Sum Hospital Bhubaneswar.
  • 12.05-12.15:Organ Donation- the need, the policy and the future
  • Dr. Ashok Choudhury, Hepatologist, New Delhi

Login to www.ilpfindia.org// email at:- info@ilpfindia.org

Let the Fight against Liver Disease start Today

5th March 2017(Sunday)
Kalinga House, Panthanivas
Near BJB College, Lewis Rd, Bhubaneswar, Odisha
751014

12.15-12.50: Is healthcare is the concern of policy makers- Role of

community and ourselves i.e. the public and partners like ILPF.

Patient Perspective: (2min each)

  • Mr.Ravi Pratap,
  • Mrs Sanju Agarwal
  • Mr.Rajnish Mishra,
  • Mr.Pradyumna Das,

Doctors Perspective: (2min each)

  • Dr Uttam Pani,
  • Dr Bharti Acharya
  • Dr B K Pati
  • Dr P C Dalai

General Perspective: (2min each)

  • Mr.Godabarish Sahoo (Rotarian),
  • Mr.Madhab Ch Nanda (Spiritual person)
  • Rev Satya Majhi (Spiritual person)

Policy makers Perspective: (2min each)

  • Mr. D Mohanty (OAS, Dist Subregistrar)
  • Mr.Pradyumna Jena (Young Poltician),

Third Pillar of society: (2min each)

  • Mr.Sukant Sahoo, (NGO, PLAN international)
  • Journalist-Electronic media
  • Journalist-Print media
  • Mr. Manoj Moharana (Asst Manager, National Insurance Co.)

Few words from our beloved Guests

  • 12.50-13.00: Mr. Kuna Tripathy (Social activist, Journalist, News Fuse fame)
  • 13.00-13.05: Mr. Binod Dash (Secretary, OPECA)
  • 13.05-13.10: Special Guest: Dr. Binod Kumar Mishra, Director Family Welfare, GoO
  • 13.10-13.15: Special Guest: Dr. Indramani Jena (Secretary, OPHNHA)

  • 13.15-13.25: Prof P K Dash (Ex DMET, Odisha)
  • 13.25-13.35: ILPF in summary: Dr. Ashok Choudhury, New Delhi
  • 13.35-13.55: Videos on Awareness
  • 13.55-13.58:Vote of thanks: Dr. Suvendu Mishra
  • 13.58-14.00:National anthems and Closure of ceremony

For any queries contact- 9861273580/7838879843

Press Release

Indian Liver Patient Foundation (ILPF) is a non-profitable, charitable organization set up by the like-minded people that include -liver disease patients; health care providers, policy makers and volunteers who want to support the cause of liver disease.

According to the latest WHO data published in May 2014 Liver Disease Deaths in India reached 216,865. Hepatitis B related liver disease- affects 3% of population of India i.e. with a population of more than 1.25 billion. India harbors 10– 15% of the entire pool of HBV carriers of the world. Approximately 10 Lakhs infants born every year in India, run the lifetime risk of developing chronic Hepatitis B infection and is due to mother to baby transmission. Its preventable by simple screening of mother as well as vaccination to the newborn. Alcohol and liver disease progressively increasing due to increased accessibility and percapita income. It affects the younger generation, mostly from middle or lower income groups and makes them to loose most years of their life because of drinking and its consequences. The burden of obesity has been steadily increasing. The prevalence of fatty liver related disease ranges from 5-28% i.e. about 30 million of Indians. And the problem is expected to get worse as obesity is increasing due to urbanization, economical improvement and the sedentary life style due to entrance of modern technology and Internet. Further, obesity among children and adolescents too is rising rapidly making the younger generation at risk from early age and a long life to survive with poor quality.

The incidence of this cancer has been steadily rising at an alarming rate, liver cancer was recognized as the 4th most common cancer in males in India. It is mainly due to hepatitis B and C, and presently the fatty liver related cirrhosis is also becoming a major concern.

After the disease beyond control, transplant is the only treatment to improve survival. In India 200,000 people need a new kidney every year and 100,000 need a new liver, but only 2% to 3% of the demand for new organs is met. Finding a donor, family members to accept their loved one is brain dead and the religious superstitions, makes the thing more complicated and is mainly due to the lack of awareness as well organized policy.

The limited infrastructure, poor access to specialized health care, less number of experts in the field further makes the

scenario more difficult. Because the liver disease, Hepatitis B, Liver cancer still not considered by the policy makers not by the social bodies in large scale.

We think– Experienced patient is half doctor. As by going through the phase of agony, sufferings and coped with difficulties there off they know the real life facts, the ground level difficulties. It is difficult to know by a doctor or can be achieved by reading the books or Internet. In the time of busy schedule, limited number of experts in the field, an experienced patient forms a bridge between the experts/doctor in one side and his/her fellow patients at the other side. He/she is the torchbearer to others who are unable to get the timely advice, referral or care or proper follow up. ILPF emerged from a desire amongst Indian liver patient groups to share their experiences. ILPF emerged from a desire amongst Indian liver patient groups to share their experiences because they proudly say, “ I suffered, I care and now it is you”.

ILPF’s mission is to ensure a community with minimum burden of liver disease. ILPF’s focus is the patients with liver disease and associated illness. Aim of ILPF is to promote the interests of people with liver disease in particular and that of community in general. Patient empowerment, better compliance to treatment and disease prevention by keeping patient at the fore front and making them as the brand ambassador for mass replication. ILPF is also set to highlight the size of the problem; to promote awareness and prevention; to work with professional bodies and to ensure that treatment and care and finally to bridge the global gap in the field of academics and research relating to the liver and liver diseases. It is registered at District Sub Registrar, Bhubaneswar under Indian trust Act 1882, Bhubaneswar Odisha. Within a very short period ILPF has got associated with many agencies and undertook various welfare activities. Started its work in Delhi-NCR and Odisha, and expanding to other states (Gujarat, UP, MP, Haryana, Punjab) in short time.

We can be reached at www.ilpfindia.org. The official website (under construction), also in social media i.e. twitter handle https://twitter.com/ilpf_india also in Facebook https://www.facebook.com/profile.php?id=100014438897155. Never hesitate to drop a mail to us in indanliverpatientfoundation@gmail.cominfo@ilpf.india.org